Tag Archives: oropharnygeal cancer

Some are confused between the radiation therapy being successful on my tumors and my cancer NOT being cured

Just got to explain my situation to those who do not understand how cancer works.
1- yes, the radiation was successful. It killed the 26 tumors.

2- I am not “cancer free”

3 – my cancer is in remission

4 – before they killed the tumors my body got very damaged. Mostly in the frontal lobes of my brain. Hence, the deafness and possible blindness. It is possible that I could easily lose all bodily functions as the frontal lobes are the most important part of our body. If the pharyngeal cancer comes back it could easily make me a vegetable.

5 – I have 2 cancers – the “pharyngeal”, which is responsible for the 23 floating neck and head tumors. 3 of which are in my brain, 3 next to my heart and 17 roaming around in my neck. These tumors are outside of my esophagus. The radiation killed the existing tumors.

THEN, I have “Squamous Cell Carcinoma” – – – this is the killer – it is responsible for the huge tumor on the base of my tongue and two little ones beside the large one. It has destroyed my tongue beyond repair. I will have a large hole in my tongue for life.

6 – For now I am safe from “cancer”, BUT, if my body doesn’t absorb the benign pharyngeal tumors the doctors will have no choice but to crack open my chest to remove the tumors by my heart – open my neck to get the ones floating in it and they are hoping that they can pop out my left eye ( cause it is already very damaged from the time I was on life support for 6 weeks and I can barely see through it) and hopefully be able to get to and remove the 3 on my brain.

They wanted to do actual brain surgery but I refused to allow them because they would have to remove the existing plate in my head and there is a 95 percent chance that my body will reject the new plate. I will not EVER allow them to open my skull. (The existing plate I have had since 1972 – obtained in Montreal during the “biker wars, nuff said about that)

So, yes, I am very happy about my diagnosis of the radiation working on the tumors.

I still have cancer.

My body has to deal with the damage from the tumors.

Also, the stroke, the septicemia poisoning, the abscess and my spleen exploding damaged a lot of my organs – which some can be repaired and some not repairable

So, my dear friends …. we have cause of celebration of the successful radiation treatment. And believe you me, I am forever thanking the Lord for His mercy.

I still have a year or more of treatments ahead of me. And many possible surgeries.

And this I shall get through via the mercy of the Lord, the Prayers and love from my beautiful Prayer Army and the love and support from my truest soul mate, Maria Angelica M.

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For Those Who Wonder Where I Have Been

As most of you know in late October I was diagnosed with Squamous Cell Carcinoma and Pharyngeal Cancer.

Due to the advance stage conventional chemotherapy and radiation were off the table.

My only options being surgery to completely remove my tongue, larynx and most everything else within my neck or radical radiation treatments twice a day for 20 days and see what the result would be.

I, of course, opted for the radiation. I began treatment in early December.

I had to have a gastric feeding tube implanted as I would definitely need it as treatment progressed.

I was doing well until early January when I developed a very large abscess in my lower abdominal cavity between my stomach and muscles.

Mind you, this abscess had nothing whatsoever to do with the cancers or the feeding tube. It just decided to appear and grow and grow.

The fine surgeons here at Princess Margaret Cancer Hospital immediately dealt with the demon infection. Part of the process involved inserting a necessary draining tube.

If it were not for bad luck I would have no luck at all.

Hence, I had many complications from the drainage tube requiring me to spend most of January in the hospital.

Fortunately, I was still receiving my radiation therapy as per scheduled.

The infection took a fair amount of time to get cleared up and by the end of January 2019 I was declared infection free and discharged to home.

I would resume my radiation therapy as an outpatient as per the original plan of care. I was so happy to finally get to go home after almost a whole month of hospitalization.

I arrived home February first. Very sore, but happy.

I slept well the first night. The second night I had a slight pain in my back but I put that off as getting used to sleeping on my own bed instead of the hospital bunk.

I am not sure what time I woke up that morning.

What I am sure of is that I woke to the most excruciating pain you could possibly imagine.

The pain was so intense I could not even scream for help. I literally had to call to the next room to wake my good friend who was watching over me.

I honestly thought I was going to die.

Immediately she called 911 and within minutes I was in an ambulance with a police escort rushing me to the nearest hospital at full speed.

All I remember about the ambulance ride was the EMS man telling the driver they had mere minutes to get me to surgery. My blood pressure was 49 over 43.

I passed out.

Next memory was surreal – I was in an elevator, someone was cutting my shirt off and I heard the surgeon say,

I have to open him right now.”

I felt the scalpel cutting through my abdomen and I saw my blood covering everyone in the elevator.

I passed out.

I awoke many hours later in ICU.

Surrounded by my family and dearest loved ones. I was not sure if I was alive or dead. But, when I blinked my eyes, everyone single one of them cried and I knew I had survived something very serious.

My spleen had literally exploded. Like a small nuclear bomb.

Apparently I had lost almost all my blood – if not for my living so close to a hospital I definitely would not be here to author this blog.

I spent one week in the Michael Garron Hospital in East York, Toronto. Bless the surgeons there for saving my life.

I was then discharged from there do I could go into Toronto General Hospital as an in-patient and then transferred across the street to Princess Margaret Cancer Hospital where I am now.

It sounds complicated but Toronto General, Princess Margaret, Mount Sinai and a few other medical facilities are all side by side and part of the same University Health Network and also connected to The University Toronto.

I am in one of the highest rated cancer hospitals in the world and I am forever thankful that the Creators have given me yet another chance to live.

My road to recovery is going to be a long difficult journey. The spleen is an important organ. Yes, you can live without it, but I need many vaccinations and for the rest of my days I will have to be very vigilant not to get infections and such.

My radiation therapy is back on track and I finish my first series of treatments on March the first. Which is also my oldest son’s birthday – so I take that as an omen of good fortune.

I will write more at some point down the road. I just wanted my followers to know why they haven’t heard from me in a while.

People, look around at your family and friends and let them know how precious they are to you. Life can change in the blink of an eye. Or the pop of a spleen. Never be afraid to tell them you love them.

I am a tough old dude with very tough masculine friends and I have no qualms hugging them, kissing them and saying, “I love you Brother. “

The greatest gift I received from this disaster was seeing my dearest and most close friend standing there with love and joy in his eyes when I blinked that first blink. To see my sons faces fill with relief when I spoke.

Life is a precious gift and to have life and love together cannot be matched by any other thing.

Namaste’

Hope Is All We Really Have

So, final diagnosis from the surgeons …. oropharyngeal cancer’ in the neck and my cranium. And now in addition to that I have been diagnosed with Squamous Cell Carcinoma which has grown in the form of a very large tumor on the back of my tongue.

This tumor presents life threatening and serious consequences. Hence, my throat is closing up. On January 3rd, 2019 I will begin radical chemo/beam radiation treatment for periods of six and a half weeks, a short break and then repeated.

Also, I have to have a surgically implanted feeding tube installed and a trachea breathing airway in my throat and a port-a-cath for administrating medications and such.

I have battled many things in my life, but this will be my greatest battle of all. I am scared. I am not ashamed to admit that. I cry at night. I cry when no one but my soulmate can see or hear. I have the right to cry for I may very well not make it through this battlefield of treatment.

The doctors say if the Squamous Cell reaches my liver there will be little they can do other than dope me up and let me pass on to the next space/time continuum.

I have walked my seven paths on the seven continuum’s. The eighth you do not return for that is the one where the Light chooses you, not you choosing the Light.

If that is what lays before me, I am okay with it. I have lived a wild life, Blessed life – a life many would be jealous of. I have walked many different paths, a beggerman, a thief, a hippie, a biker, a vagabond, a father, a husband (a few times), an electrician, a poet and recently, an author.

To quote Kid Rock, “I have ate of dumpsters and I have dined with Kings.”

I would do it all over again if given the chance. My lifestyle and the choices I made, although often tragic, gifted me with meeting tens of thousands of people from every walk of life there is. I learned from them, I absorbed knowledge from every encounter and the greatest thing I was rewarded with was “SURVIVAL” .

I left my parents home at the age of 12. A mere snot nosed baby in diapers. I never went home since then.

Who does such a thing you may ask.

I do.

I am ‘LightHouse Dann Verner’.

A man who some say has lived many tragic lives.

The first decade of my life I had lived in thirty-two homes. None of which I ever spoke the words, “Mom or Dad”. Only “Mister or Misses”.

I started my ‘Walks’ at the age of ten fighting the monsters in my head. The demons were winning for many years.

I left my siblings Father’s house at the age of twelve to join a hippie commune and learned how to be a Heroin addict.

I have never slept in my father or mothers house since that day.

That was over fifty years ago.

Foster care, jails, pain, sorrow and addiction were my childhood friends.

My playgrounds were the streets.

My rocking horse a Harley Davidson motorcycle.

I learned how to survive the best I could. I learned the harsh realities of everyday life. I learned deceit, honesty, love, hate and most of all “HOPE”. I survived day by day hoping the next sunrise would be better.

Sometimes it was better. Sometimes it was not.

I have hope today. Hope that although there lays a fifty/fifty chance I will soon be ascending I will survive.

For hope is all we really have.

Namaste’

D-day 4 Dann

I have cancer on my mind.

Literally ….. true story.

As I previously wrote, I have been diagnosed with ‘oropharyngeal cancer’ in the neck and my cranium.

Which has migrated into my skull proper.

Hence soon, if not already, ‘brain cancer‘.

So,

Deja Vu.

Once again it’s 4:20AM and here I sit, awake. Day 4 without sleep.

The physical pain is insane.

Yet, my broken ‘heart’ & ‘spirit’ are far worse.

I cried all last night over a personal matter and the stress of waiting for the upcoming news.

And, Deja Vu.

Here I sit crying like a pussy once again.

The second night in a row.

Mostly over the personal matter of learning that I am being perceived as ‘dishonest’ and a liar regarding my vows of love & of friendship.

I am or have been a murderer, a robber, a gangster, a thief and an idiot.

BUT a dishonest lover I am not, nor could I ever be.

I was self-raised on these streets since the age of 12.

I learned young that your ‘Love’ for your partner MUST be true and definitely sincere. You cannot say that you love someone and then cheat or lie to them.

I take pride in my loyalty, my love, my devotion and most of all my ‘HONESTY’. These are the cornerstones of any couple.

Anyone who knows me well knows I am not dishonest. I do not, have not, nor would I ever ‘cheat’.

I know the pain that inflicts all too well.

I am not dishonest in love.

I don’t lie about my emotions.

Nor would I play with the heart of anyone – friend or foe.

Who would want to claim a false love as real love” ?

No soul has the right to do such an evil thing. No person should ever damage another person in such a sadistic manner.

Many people contort the definition of “love”.

I learned very young that if you say something it should be sincere and honest.

I love my ‘Queen’.

The love I have for her cannot be shared with anyone else. I have given her all my heart. As you are supposed to when you swear your love.

She is my true soul mate, my lover, she’s my best friend. She is “mi Corazon“.

And one Corazon is all you get.

I have many friends.

The majority being females. Guys are idiots. My circle is a triangle.

I tell them both, male or female, that I love them all the time. I do love them. They are my friends.

But, not the way I “love” mi Corazon.

Definitely not in a sexual way.

It is not that type of “love”. It’s the love you show a ‘true friend’.

A completely different type of love.

Secondly,

My tears also have been falling as I am coming to the realization that I may have to face that ‘final‘ ….

Walk With Dann” .

That torturous, downward spiral of pain ending in the horrific death of cancer eating my brain like an invisible zombie.

61 years of hurt I endured so far.

The majority via a broken heart. Time after time. Over and over.

I don’t fear loving just because I have been a victim of dishonesty.

You cannot punish your future for what your past ‘has’ done. (Key word being ‘HAS’).

I am tired. Very, very tired.

Not sure if I should try to battle this battle or succumb to the depression and sadness perched upon my shoulders.

Death would be so relaxing. I know first hand.

You can’t cry over being perceived as a dishonest person when you are dead.

For to live and share your honest, deepest feelings to people who do not believe a word you speak is a real ‘Hell’.

Read my ‘Walk With Dann Collection’. I explain how your perception of ‘Heaven & Helheim’ are not as you are taught or even perceive them to be.

I am tired of adult life.

I am very, very, very tired.

And now it is D DAY 4 Dann

Later today I will receive either the worse news anyone would wish to hear,

or, perhaps the medium bad news stating a long list of parts to be removed,

or, good news saying that they can remove all the cancer and I shall live lonely ever after.

Yahoo!!!!!!

Good news for some people … not so much me.

I am tired.

Very tired.

I am all alone in a crowded room.

That room called ‘life‘.

And I am tired.

As we say in Nazarim, “Hineni”

“I’m ready my Lord”.

Life‘ number 8 was far more painful the my 7 times ‘dead‘.

I have mixed emotions over the cancer and what course of action I should follow.

Right now 70% of me is saying to refuse all and every treatment, come home, sit on my favourite chair and wait for death.

I want to.

I am not ‘living‘ – I am merely ‘existing’.

I am tired of existing.

30% of me hopes everything will workout and I will be happy.

But, how can a man perceived by his truest love as a liar and dishonest man find reasoning to fight has third battle with the demon desease?

And I am tired, very tired.

I guess I will find the answer to that question in exactly five hours and sixteen minutes.

Life has to have meaning. My dictionary of life is completely used up.

I honestly do not wish to go on existing without meaning.

No matter what, I have had a 61 year wild Nantucket Sleigh ride through every walk of life there is.

And now …….

I am tired.

I look forward to Valhalla or Helheim.

Be it sooner or much later.

I will smile as I enter either.

For then my heart will no longer hurt, nor my eyes bleed tears of heart ache.

I am an honest man. I believe strongly I am.

And I would never cheat on a soul I pledged my heart to.

I have a huge decision to make today.

It’s a literal ‘life or death‘ choice I must make.

At this time I am leaning towards ‘no treatment’.

We will see what happens at the hospital.

I am tired and I want to go home.

Plus, I ain’t looking so well …